Tag Archive for patients

Loophole in Guidelines for All Drug Patents


Patients living with HIV/Aids, cancer and kidney disease have called on the Department of Intellectual Property (DIP) to make it harder for drug makers to extend their patents, claiming the practice prevents poor patients from accessing life-saving medicines.

This comes as the department drafts new guidelines for issuing drug patents. Pajchima Tanasanti, director-general of the department, said the DIP wants to hear the concerns of patients, as the issue concerns their ability to access drugs. The guidelines for drug patent registration are expected to be complete in August. They will be based on the views of all parties involved, including patients, drug producers, academics and legal experts.

Registered patents provide 20 years of protection for a drug formula, and allow producers to quote prices as they see fit. However, patients have become concerned about so-called “evergreening”, in which patent holders – typically large, multinational drug companies – can apply for new patents by making only minor changes to a drug formula. The strategy allows them to keep an existing patent in play for much longer than intended.

I didn’t even know of this Governmental group but it welds some serious power despite its odd initials. This is a serious issue as you can see.  A company can ‘modify’ a drug a bit then extend and keep pricing high through this loophole. For any persons needing life saving drugs, this issue will be critical later in the year. Now you know.

Tom Thayer

Info; http://www.nationmultimedia.com/business/Drug-patent-loophole-raised-30180645.html

Treatment Diaries


Focus on Resources

At TreatmentDiaries.com, anyone can share their feelings and thoughts at any time of the day or night.  The website was created by Amy Ohm a few years ago, and is available to anyone.  This site offers the opportunity for patients, advocates, caregivers, and family members to share information and to connect with others affected by and infected with various illnesses. The result is that the feeling that one is going through something alone is no longer a factor.

Although similar to an international, web-based support group, the website is not time limited, and is available 24 hours a day.  The site also does not focus on one particular condition, but instead hosts over 1,400 illnesses, including some that are rare.  Due to the numerous benefits of the site and the broad sense of anonymity, the site is used by ARE’s Case Management Team as a referral source for all of the agency’s active consumers.  For more information, please take the time to visit the website, and feel free to “connect, share, inspire”.

By: Cathy Sencindiver & Amber Clark